WHAT??!!?? Wait a minute. This IS my life. This IS my normal (or a variant of it). If I am waiting to get back to that other normal, the one I used to have way back when, I am waiting in vain. I know this. I warn other people about this, and yet, I fell into it myself. Don't put off living your life, waiting until you feel better, or a particular event occurs. It may not occur, or even if it does, you may miss out on some wonderful opportunities while you were waiting. Live your life now, the best you can, with what you've got.
For the past 25 years, I have consistently had various types and levels of pain in various body parts. I describe it as being a member of the 'Pain of the Month' Club.I never know where I will hurt next, but when it shows up, it likes to stay for a month or two or ten. The fatigue I have only had for about ten years, at varying levels. The fact that this current pain is in my head compounds the cognitive problems that the fatigue causes, but it isn't anything new or unusual, just a variant.
Okay, so I realize that this is my life, no use waiting for it to get better (it might, or it might not, it might get worse). Now what? I need to get motivated, and to resist procrastinating. So easy to say, not so easy to do.
Having a routine and a schedule make the biggest difference. They both get me up and moving. One 'rule' I am instituting is using the morning time for me: exercise, grocery shopping, etc, and the afternoons for business: writing, job related pursuits, art, etc. I plan to not only have an ongoing to-do list, but pick out certain items from the list and what time I will do them. I will get up off of the couch more often, because sitting makes me sleepy, and sleepy plus fatigue makes me feel worse. I can set small goals for each day.